Researchers at the Australian Parkinson’s Genetics Study (APGS) are calling for Chinese Australians to take part in ground-breaking nationwide research with the aim to crack genetic code of Parkinson’s Disease. Better understanding the genetic basis of Parkinson’s is essential to accelerate the discovery of new drug therapies to prevent, slow, stop and cure Parkinson’s Disease.
If you would like to help, please visit: https://www.qimrberghofer.edu.au/apgs/
昆士兰医学研究所的研究人员正在研究帕金森病患者的基因信息，以了解导致该病症的原因并改进治疗方法。研究人员呼吁华人志愿者的参与。通过您的参与，可以帮助研究人员更好地了解华人帕金森病患者的情况，为未来的患者提供更好的治疗。目前此项研究的非欧裔参与人员仅占7%，研究人员希望将这个比例提高到15%。
如果您有意报名參加此项研究(25分钟回答网上问卷和居家采集唾液样本)，请访问: https://www.qimrberghofer.edu.au/apgs/
Why involvement from Chinese Australian’s is important:
While Parkinson’s affects people from all ethnicities, there are some variations in the genetic and clinical characteristics in Asian populations such as Indians and Chinese. Currently, only 7% of APGS participants identify as non-European, and researchers aim to increase this to 15% or more in the coming months.
With the help of Chinese Australians diagnosed with Parkinson’s, scientists can better understand differences in the disease presentation, progression, and treatment response among different populations.
What does participation involve?
Participation is easy and can be done from the comfort of your home. It involves a ~25 minute online (or paper-based) questionnaire and providing a saliva sample using a kit sent via traditional post.
The online questionnaire will ask information such as your contact details and questions about your experience with the disease, family history, medical history, lifestyle, and environmental risk factors.
After completing the online survey, participants may be asked to donate a saliva sample, from which researchers can extract their DNA to identify specific genes associated with Parkinson’s disease. Researchers will send a saliva collection kit together with a pre-paid return envelope to selected participants.
Who can participate?
Volunteers with Parkinson’s disease who are:
- Male or female
- Any age
- Diagnosed with and treated for Parkinson’s disease
- Residing in Australia at the time of participation
Volunteers who DO NOT have Parkinson’s who are:
- Male or female
- 45 years of age or older
- No family history or diagnosis of Parkinson’s disease
- Residing in Australia at the time of participation
